On our website, we aim to help all concerned parents and adult patients by providing the most important information, publishing up-to-date research results, and contact details of doctors and patient organisations in Hungary and Europe. If you or your child is affected, please join us! We need to build a strong community to give us a chance for a cure in Hungary!
Our goals:
- To provide therapeutic, research or other information relevant to SMA to SMA patients in Hungary.
- To bring together SMA patients in Hungary, to share experiences and information.
- To represent the interests of SMA patients and their parents in Hungary.
- Organising meetings, conferences and events.
- Establishing and maintaining contacts with doctors and professionals involved in SMA research or treatment in Hungary and abroad.
- Supporting the work of doctors working with SMA in the country.
- Supporting the organisation of domestic clinical trials on the disease and the procurement of equipment for these trials.
- Support research into, and participation in, the treatment of SMA.
- Support for the treatment of SMA patients.
- Fundraising to finance the above objectives.
Association data:
Full name of the association: Association of SMA Patients in Hungary
Bankszámlaszám: 10701331-22446905-51100005
Tax number: 18016354-1-41
President: Krisztina Buday
Members of the Presidency: Antónia Oraveczné Kovács and Tímea Tóth
Members of the Supervisory Board: Richárd Román, Viktor Lakatos and Máté Forgács